NIRDP gets out and about

The pupils and staff of St Colman’s Primary School, Lambeg, helped raise £300 for NIRDP, by having an Olympic Torch Relay in school this week.

Before the event, the school had given each family information about NIRDP. One of our members, Fiona McLaughlin, spoke to each class about rare disease and how NIRDP works.

All children and staff got to carry the torch, under the watchful eye of teacher Robbie Crouch, NIRDP supporter and Olympic torchbearer.

There were many smiles and much laughter. The children really had fun with various styles of carrying- from over the shoulder like a bag of coal, to dancing, balancing with crutches, held high over the head, even a regal wave or two. Teachers, classroom assistants, maintenance and canteen staff- everyone had a turn and a big smile.

Thanks to everyone at St Colman’s for the time, and the fantastic support for NIRDP.

Supporting our Torch bearers

NIRDP is delighted to be able to support members, family and supporters taking part in the London 2012 Olympic Torch relay coming to a street near you over the next few days.

Leigha Coade, who has Cystic Fibrosis, will be carrying the torch in Carrickfergus on Sunday 3 June, around 11 am. Leigha was chosen because she lives her life in such an inspirational manner, as demonstrated by her nomination: She has come through so many personal challenges this past few years and deserves to have a little light shone upon her. I know that she would love to do this and would love to play a small role in making 2012 Olympic history. She is a truly inspirational young lady who, having seen some of her friends lose their battle to this illness, carries on and faces life with strength and determination. She is my hero. Life for someone with C.F can be very lonely and Leigha knows more than anyone how that feels yet she continues to smile and pick herself up and soldier on when most people would have given up long ago. Please give her an opportunity to do this as life for us is about creating memories because one day that may be all I ever have left of her. I promise she won’t let you down and I know you will give her a focus and a reason to carry on the battle to make it through another year.

On Tuesday 5 June, the torch will be carried in Banbridge by Robbie Crouch, whose mother in law died last July from Progressive Supranuclear Palsy. Robbie was nominated because of his contribution to student and youth sports in NI for over 15 years.

Leigha, Robbie and their families are very supportive of NIRDP- now we get a chance to cheer them on!

Leigha: Sunday 3 June, Carrickfergus, 10.45am approx

Robbie: Tuesday 5 June, Banbridge, 5.45pm approx

Come prepared to make a noise, wave, and gather together to support our supporters!

NIRDP- we are stronger together.

Numbers of NIRDP t-shirts are very limited, so if you have a t-shirt/ hat/ banner from an individual rare disease group, please do bring that along. We’re hoping to be very visible!