I Am Breathing – Film Screening

Support the Motor Neurone Disease Association Awareness Month – film screening at the Belfast Film Festival

The Motor Neurone Disease (MND) Association is the only national organisation in Northern Ireland, Wales and England dedicated to the support of people with motor neurone disease (MND) and those who care for them. Every year in June the Association promotes Awareness Month with a campaign to spread the word about what is such a devastating disease.

This year the campaign is based around an award winning documentary film, I Am Breathing.


It shows the few months of Neil Platt’s life with MND. Neil passed away in 2009 and let the filmmakers from the Scottish Documentary Institute in his home 24/7. His goal was to leave a message for Oscar his son, then just a few months old and also to spread awareness of MND.

I Am Breathing is being premiered at the Edinburgh Film Festival on Thursday 20 June. A special filming on Global MND Awareness Day takes place at the Belfast Film Festival on Friday 21 June. On the same day and throughout June there will be more than 100 community screenings right around the world reaching thousands of people. Find other screenings here: http://www.iambreathingfilm.com/

Tickets cost £3 for the event (plus £1 booking fee or you can pay at the door) at the BFF micro cinema at 23 Donegal Street on Friday 21 June at 7pm. The film last 70 minutes.

To book tickets see  http://belfastfilmfestival.ticketsolve.com/  or call +44 (0) 28 9024 6609

To read more about Neil and his widow Louise’s commitment to fulfill his legacy through the film read the recent feature in the Telegraph here.


Please note that the film is hard-hitting and is not suitable for children. It may also make difficult viewing for people who have had first-hand experience of MND. However, as a tool for those people who know little about MND or perhaps work in associated caring professions it is an valuable insight into how the disease impacts of real life.

Please spread the word about this screening and attend if you can.

Study day

NIRDP hosted a study day for health professionals and care providers in Strabane, Co Tyrone, on 6th March. Participants came from all over the Western Health and Social Care Trust area, and from Donegal.

The event was chaired by Dr Colette Donaghy, consultant neurologist, and there was expert input from

  • Dr Aine Abbott, GP
  • Majella McConville, Nurse Specialist, Huntington’s Disease
  • Kat Haines, Nurse Specialist, Progressive Supranuclear Palsy
  • Alison Dick, Motor Neurone Disease Network Coordinator

Carers Pat and Fiona, and Paul, who lives with MND, spoke about their personal experiences of the impact of rare disease.

In the afternoon there were workshop sessions

  • Compassion fatigue- how am I doing?
  • Family scenario-who do I tell?
  • Challenges in rare disease- supporting the carer

Completed evaluations show the event to have been successful, and more of the type have been requested.

If you have any particular areas of interest you’d like NIRDP to support you with, do get in touch- join us or contact us.

We look forward to working with you.