Raise Rare Disease Awareness: Host a RariTea event!
Raising awareness of Rare Diseases is crucial to every aspect of our work to improve services and the quality of life. So we are launching our first Northern Ireland wide awareness-raising Campaign, aiming to make an impression in every town and townland.
Our approach is based on the popular “coffee morning” model, but our focus is on our favourite tipple, Tea!
We are partnering with local tea company, Infuse Artisan Tea, a Coleraine based business, who will be helping to lead the way.
The RariTea events will coincide with the worldwide events marking International Rare Disease Day on 28 February, so will focus on the period from mid-February to mid-March (21 February – 7 March)
To get involved, just get together – a few individuals, an organisation, a business, a sports team – and hold a RariTea event. It can be a posh Afternoon Tea; or a mug of Builder’s Brew…just have some tea, and take a picture (or two) for Twitter, Instagram etc tagging @NI_RDP (twitter) or @NIRDPNews on Facebook, and use the hashtag #RariTea
Register your interest via this link; show that we are #StrongerTogether, and help make a difference in 2019!
Come along to our Launch event, on Thursday 21 February in the Burrendale Hotel, 51 Castlewellan Road, Newcastle, BT33 0JY, from 2 pm to 4 pm- Register here!
Or join us on Monday 4 March, in Harrison’s of Greyabbey, 35 Ballybryan Road, Greyabbey, BT 22 2RB, from 10.30 to 12.30- Register here!
All money raised will go directly towards raising funds for a full-time Northern Ireland Coordinator who can help families and patients affected by rare conditions access the help and support that they often fail to receive.
Show your support this February and help make a difference to the lives of those affected by rare and hard to diagnose conditions.
To find out more contact us via email at firstname.lastname@example.org