NIRDP are pleased to announce that we will be coordinating a series of open meetings across the region for consideration of the draft NI Rare Disease implementation plan.
The meetings are open to all, and are being held in association with senior clinicians, experienced in a range of rare diseases. They are an opportunity to meet others interested in rare disease, and to share experiences and thoughts on the development of services until 2020.
What matters to you?
|17 Dec 2014||Gransha Londonderry||2pm – 4pm||Dr Stewart||Board Room, Gransha|
|6 Jan 2015||Swah, Enniskillen||2pm – 4pm||Dr McConnell||TBC|
|7 Jan 2015||Newry||TBC||TBC||TBC|
|8 Jan 2015||Craigavon Area Hospital||2pm – 4pm||Dr McConnell Dr Magee||Conference Room, Portadown Care and Treatment Centre|
|12 Jan 2015||Antrim||2pm to 4pm||Dr Stewart||Whinstone Suite, Antrim Civic Forum|
|13 Jan 2015||Belfast||4pm – 7pm||Dr Deidre Donnelly, Dr Shane McKee, Dr Tabib Dabir||Science Block A, RVH|
The Department wants “to ensure that feedback from service users and carers underpins the identification of the commissioning priorities for rare diseases.” These open meetings are one way of being involved in that process.
We will be putting each event up on Eventbrite- so that you can tell us if you are planning to come, and we can get the tea/coffee and biscuit orders right (or anything else you need to make the event work for you!)
We will also be producing a key points guide to the draft Plan- so you can focus more easily on what matters to you…so watch the website…
We are looking forward to seeing you!