Congenital Anomaly Surveillance in Northern Ireland – a seminar
Venue: Loughview Suite, University of Ulster, Jordanstown,
Wednesday 23rd October, 12.30pm
12.30 pm Registration with refreshments and sandwiches
1.00 pm Welcome and Introduction (Speaker TBC)
Session 1: Congenital Anomaly Surveillance
1.05pm Surveillance and the prevention of congenital anomalies: Why and How?
Professor Helen Dolk, University of Ulster
1.25 pm Congenital anomalies and mortality: NIMACH
Dr Heather Reid, Public Health Agency
1.45 pm A survey of congenital anomaly prevalence in NI
Dr Nichola McCullough, University of Ulster
2.05 pm What can EUROCAT offer NI? Network, guidelines and software.
Ms Maria Loane and Ms Ruth Greenlees, University of Ulster
2.20 pm Lessons on surveillance from: The Northern Ireland Cancer Registry
2.30 pm Cork and Kerry Congenital Anomaly Register and the Irish registries.
Dr Mary T O’Mahony, Specialist in Public Health Medicine, Health Service Executive, RoI
2.40 pm Coffee break
Session 2: Do we need a congenital anomaly register in Northern Ireland?
3.00 pm Points of view of the…..
Obstetrician and Fetal Medicine Specialist: Dr Carolyn Bailie, NICRCOG; Fetal Medicine Department at Royal Jubilee Maternity Hospital
Head of Midwifery: Dr Elaine Madden, South Eastern Trust
Obstetrician – ART and diabetes: Dr Inez Cook, Queen’s University Belfast
Paediatric Surgeon: Mr Isaac Philip, Royal Belfast Hospital for Sick Children
Regional Paediatric Pathologist: Dr Claire Thornton, Royal Group of Hospitals
Medical Geneticist: Dr Shane McKee, Belfast City Hospital
NI Child Health System: Dr Brid Farrell, Chair of the Regional User Advisory Group
Privacy Advisory Committee: Professor Roy McClelland, Belfast Trust
Northern Ireland Rare Disease Partnership : Ms Christine Collins
People living with a congenital anomaly and their Families: Mrs Frances Murphy, Contact a Family
General discussion (Chaired by Professor Helen Dolk)
The Way Forward: Resolutions (Speaker TBC)
4.30 pm Close
To register for this seminar please contact Julie Cummins, Research Institute Administrator, Institute of Nursing and Health Research whose contact details are:
The closing date for registration is Monday 14th October 2013. There is no cost for this event
This seminar is one of a series of 4 half day events arranged by the Centre for Maternal, Fetal and Infant Research. Full programme details for each seminar can be found on the MFIR webpage (www.science.ulster.ac.uk/inhr/mfir)