Meet others from the rare condition family and their carers informally and have a cuppa together. An opportunity to arrange regular meetups for the Armagh area if there is enough interest. Being delivered by locally based NIRDP volunteers ♥
Affected by a rare condition? Wish to meet others in a similar situation, for peer support?
The Foyle and NW forum are meeting
Saturday 26th October 2019, 2-4pm
Irish Street Community Centre, 19 Bann Drive, Derry/Londonderry BT47 2HJ
You will be made most welcome by existing members – fully accessible venue with ample parking.
Role of Sessional Band 5 Service User/Carer Consultants in the Western Health and Social Care Trust. These are pilot roles funded through Transformation monies until March 2020 and are an exciting opportunity for any active service users or carers to become involved in the development of Trust services and remunerated at a Band 5 rate for their time.
Please see below link to the role on HSCRecruit. Applications for the role can be made online through the HSCRecruit portal.
The closing date for the posts is 1st October at 3:30pm.
The Patient and Client Council (PCC) is establishing a training and support programme to enable the citizens of Northern Ireland to take part in the various Work Streams involved in implementation of the “Delivering Together Health and WellBeing 2026” Strategy.
These Work Streams will include such high profile initiatives as re-shaping the way Stroke Services are delivered, as well as more routine matters, such as establishing dedicated centres (“Elective Care Centres”) for routine surgical procedures, which will help cut waiting lists for these operations.
There is acute time pressure, because the need to reform the Health system is so pressing; so the PCC are taking the first steps to recruit people who would be interested in participating in the Work Streams, and to provide the first step of the induction and training process.
Please see the PCC’s Making Change Together infographic
for more details If you are interested in taking part, register your interest with Jessica Murray (e mail: Jessica.firstname.lastname@example.org); and spread the word in your networks. This initiative will be a great opportunity to get our voice heard, where and when it matters, in building our Health and Social Care system.
We in NIRDP are working in partnership with the PCC to design and develop the training and support programme, bringing our NIRDP Members’ knowledge and experience to the table. Julie Power, our Director and Secretary and a EUPATI Fellow, and Kerry Moore, our RANK Foundation funded “Time to Shine” Intern, are working with Jessica Murray in the PCC to assemble and develop the training package. This will start with a basic introduction to the HSC system, but will lead on to modules covering wider issues, including how to engage and advocate most effectively as an “Expert” Patient/Service User/Carer.
Improving Neurology Care in NI
Engagement Workshop – 2ndJuly 2019
The Department of Health and the Health and Social Care Board are jointly hosting a workshop as part of the Department’s Regional Review of Neurology Services.
The Review is looking at how neurology services can be improved and become more effective over the next 10-15 years, and we want your views to play a central role.
The workshop will take place on Tuesday 2ndJuly 2019, from 11:00am to 3:00pm at
Belfast Central Mission (BCM)
5 Glengall St.
The morning session will focus on providing information on the Review and seeking your thoughts on the main areas you feel should be improved. This will help us develop a vision for neurology services.
The afternoon session will focus on how we can ensure services are better coordinated and patients can access help and support in a simple and accessible way.
The Department of Health is committed to a coproduction approach to the Regional Review. We hope that you will considering joining us to share your views. If you would like to participate, please contact us at email@example.com phone 028 9076 5643.
This is the start of a conversation and there will be further opportunities to share your views throughout the Review process.