Rare Disease Day 2020: Joint North South Event, Belfast 28 February

Planning is going on for the 2020 Joint North South Rare Disease Day Event!

NIRDP are working with Rare Disease Ireland and others to plan an inspirational and informative day, in QUB’s  Riddell Hall on 28 February 2020.

 

https://www.eventbrite.co.uk/e/joint-north-south-rare-disease-day-conference-tickets-90128668273?aff=ebdssbdestsearch&fbclid=IwAR0Ibl-6ZYqOjm9zQdwaFYS6Na8qjlqu2uf9c8L4cWRfpx_W73W-0zWMHiE

 

Ards and North Down Rare Disease Forum: Forthcoming Events!

Thanks to the generous support from Ards and North Down Borough Council, we are holding our second North Down and Ards Rare Disease Forum event on 16 January 2020, in the Carnegie Library, Hamilton Road, Bangor BT20 4LH, from 12.15pm to 2.30 pm.

This event is focussed on those who are caring for someone with a rare condition,  in partnership with the QUB Rare Disease Team, who are gathering evidence about how support for rare disease carers could be improved.

Outline Agenda 

12.15 Refreshments:  (tea, coffee, water, scones, cake)

12.35 Welcome:  Dr AJ McKnight, Queen’s University, Belfast

12.45 Carers Research Project: Julie McMullan and Kirsten Downes, Queen’s University Belfast

13.00 Facilitated Conversation: Exploring challenges, what is good support, and priorities to improve support for cares across Northern Ireland (Facilitator: Grace Henry)

14.20 Close:  Rhoda Walker, Chair, NIRDP

 

Participant Packs with carer resources will be provided to attendees

Information Stands will include NIRDP, HSC Care Co ordinator, Carers NI; Contact a Family, Family Fund

 

Please do come along: there will be good company and cake,  information and support; and a chance to influence and shape change.