Thanks to generous support from Ards and North Down Council, we have been able to arrange two events over coming months for all those living or working with a rare disease in the Ards and North Down Borough!
First, on 9 December 2019 in the Ards Blair Mayne Wellbeing and Leisure Complex , from 10.00 am to 2 pm, we are holding the inaugural meeting of the Ards and North Down Rare Disease Forum: see here to register . This is a great chance to get together, and to find out more about what is available locally.
Then, on 16 January 2020, in Bangor Library, we are holding an event focussed on those who are caring for someone with a rare condition, in partnership with the QUB Rare Disease Team, who are gathering evidence about how support for rare disease carers could be improved.
Please Save these Dates- and Register to come along: there will be good company and cake, information and support; and a chance to influence and shape change.