Rare Disease “Research into Practice” Series
Ataxia: Translating Research into Practice
17 February 2017
Grosvenor Hall, Glengall Street, Belfast BT12 5AD
NIRDP has joined forces with Ataxia UK and with the support of the Public Health Agency’s Research and Development Division is bringing international experts in Ataxia together at a training Conference in the Grosvenor Hall, Belfast on 17 February.
The conference will be of relevance and interest to anyone living or working with Ataxia and other movement disorders; and to those interested in the hearing difficulties associated with Ataxia. Don’t miss this opportunity to hear from world leading clinicians on recent developments in the diagnosis and management of Ataxia; and from patients and carers on the experience of living with Ataxia.
Register now at the link below!
The event has been approved by the Federation of Royal Colleges of Physicians of the UK for 5 Category 1 (external) CPD Points.
|9.00||Registration & Coffee|
|9.30||Welcome||Christine Collins, Northern Ireland Rare Disease Partnership|
|9.35||Living with ataxia||Clodagh Clerkin, Ataxia Ireland|
|9.45||Types of ataxia and their clinical care pathways||Dr Petya Bogdanova-Mihaylova, Registrar, Tallaght Hospital, Dublin|
|10.15||The patient experience of diagnosis||Alex Duncan, Ataxia UK|
|10.25||Diagnosis of inherited ataxias: recent developments in genetics research||Professor Patrick Morrison, Consultant in clinical genetics, Belfast NHS Trust|
|11.20||How to reach a diagnosis in the ataxias: a clinical perspective||Professor Marios Hadjivassilliou, Professor of Neurology Sheffield Teaching Hospitals NHS Foundation Trust|
|12.05||Experiences of ataxia patients in Northern Ireland – results of a survey undertaken by Ataxia UK||Sue Millman, CEO Ataxia UK|
|12.30||Speech therapy interventions in ataxia||Professor Anja Lowit, Professor of Speech and Language Therapy, Strathclyde University|
|14:15||Overview of Ataxia Medical Guidelines||Dr Julie Greenfield, Head of Research, Ataxia UK|
|14:25||Hearing difficulties in people with ataxia and the use of FM hearing devices||Dr Kai Uus, Reader in audiology, Manchester University|
|14:55||Ataxia Research: Latest developments in clinical studies||Dr Julie Greenfield, Head of Research, Ataxia UK|
|15:25||Any remaining questions and closing remarks||Sue Millman, CEO Ataxia UK|