SUPPORT
We work together to ensure that no one in Northern Ireland is disadvantaged because of the rarity of their condition.
TAKING ACTION
We work to enable people who live or work with rare or hard to diagnose conditions to connect, advocate, educate and innovate in partnership with each other.
A VISION FOR CHANGE
We work to create and accelerate positive change by working in partnership with families, patients, carers, researchers, health care professionals, the local health departments and member charities.