Tag Archives: taking part

NIRDP Planning Day: 14 June 2012

About our Planning Day: WHY PLAN? The aim is to identify what we want to achieve, and to build our Action Plan for the next 3 years. To do this, we need the ideas, skills, knowledge and experience of as … Continue reading

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What do you want the UK rare disease plan to include?

Those of us who live or work with rare disease in NI have an important opportunity just now. It’s the chance to make our voices heard- to get politicians and policy makers to hear what’s important to us, what will … Continue reading

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29th February, International Rare Disease Day

Click the link to see what’s going on around the world- watch the videos, learn the flash mob moves. Be part of Rare Disease Day!

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