Tag Archives: taking part
About our Planning Day: WHY PLAN? The aim is to identify what we want to achieve, and to build our Action Plan for the next 3 years. To do this, we need the ideas, skills, knowledge and experience of as … Continue reading
Those of us who live or work with rare disease in NI have an important opportunity just now. It’s the chance to make our voices heard- to get politicians and policy makers to hear what’s important to us, what will … Continue reading
Click the link to see what’s going on around the world- watch the videos, learn the flash mob moves. Be part of Rare Disease Day!