Tag Archives: support

Foyle & NW forum

We had a meeting of our Foyle group on Monday 6 November & were delighted to mark the start of the Stronger Together project in the area. Our Project Oficer is Tanya Boggs, and she’ll be working across NHSCT and … Continue reading

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Who knows what in rare disease? Engagement, information and communication

As part of the work on the NI Rare Disease Plan, NIRDP has been running a series of Workshops across Northern Ireland, and an Online Survey, to identify information needs in relation to rare disease issues; what information is currently … Continue reading

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Living Life with Rare Disease: Taking the scare out of Palliative Care

It’s time for our Summer Meeting! This year, we are holding it, on Friday 26 June, in the Day Room at the Foyle Hospice, 61 Culmore Road, L/Derry. Our theme is “Taking the scare out of Palliative Care”. Palliative care … Continue reading

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Get together

Keep the date… for the NI Rare Disease Partnership get together! Thursday, 19 April afternoon Who else has joined? Does anyone else have a condition similar to mine? Has anybody thought about doing…? Refreshments, cake, and chat If you’re interested in … Continue reading

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