Tag Archives: Strategy

Great News! NI’s RD Implementation Plan and Genomic Medicine Centre Announced

Minister Simon Hamilton today  announced a £3.3m investment into the creation of an innovative Northern Ireland Genomics Medicine Centre (NIGMC); and formally launched the Northern Ireland Rare Disease Implementation Plan: wonderful news for patients, carers, and clinicians living and working with rare … Continue reading

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Rare disease and research – find out more

Rare Disease and Research 25th September, 2014 6.30pm Postgraduate lecture theatre, Belfast City Hospital   Reception from 6pm, with food and drink 6.30 An introduction to the Rare Disease Plan  Christine Collins, NIRDP and HDANI 6.40 Huntington’s Disease  Majella McConville, … Continue reading

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UK Rare Disease Strategy

“JOINING TOGETHER TO MAKE LIFE BETTER FOR THOSE WITH A RARE DISEASE” NIRDP WELCOMES UK RARE DISEASE STRATEGY The Northern Ireland Rare Disease Partnership welcomes the UK’s Rare Disease Strategy, and the commitment it gives to ensuring that no one … Continue reading

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Strategy Update

Our Strategic Plan is now finalised: and things are happening on the areas we identified as priorities! For example: Advocating Rare Disease Plan Along with RDUK we met DHSSPS officials recently, to build our relationship with the Department, and to … Continue reading

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