Tag Archives: Rare Disease Day

Rare Disease Day 2016 Patient Voice and Empowerment

Rare Disease Day 29 February is getting close!  Here are the full programmes for the Conference in Riddel Hall, and for the Reception in the Long Gallery at Stormont; follow the links in the post below to register NOW The … Continue reading

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RDD 2014 Conference

The second Joint North South Rare Disease Day Conference is taking place on 28th February in Riddel Hall, Belfast. This Conference will bring together policy makers, clinicians, service managers and families and people living with rare disease, to look at … Continue reading

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Rare Disease Day 2014 Booking Now Open!

Sell Tickets through Eventbrite

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Annual General Meeting!

It is hard to believe, but we have been up and running as a company for 18 months, making it time for our first Annual General Meeting, 11 September in the Ulster Hall, Belfast, from 11.00 to 11.30am The key items … Continue reading

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All The Busy

The summer holidays are still in full swing, but the NIRDP volunteers are keeping as busy as ever. Some have been in Whitehall, involved in the development of the UK Rare Disease Plan. The Plan still needs a lot of … Continue reading

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