Tag Archives: Rare Disease Day
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It is hard to believe, but we have been up and running as a company for 18 months, making it time for our first Annual General Meeting, 11 September in the Ulster Hall, Belfast, from 11.00 to 11.30am The key items … Continue reading
NIRDP was formally launched on Rare Disease day with much support from patients, families, health professionals and politicians. We were delighted that the NI Minister for Health, Social Services and Public Safety was able to participate in the event- cutting cake, … Continue reading
Local advocates call for action on international Rare Disease Day as shocking new report highlights shortcomings in Health and Social Care for people with rare diseases A new report launched by the Patient and Client Council at Stormont today to … Continue reading
Click the link to see what’s going on around the world- watch the videos, learn the flash mob moves. Be part of Rare Disease Day!
Who are we? We are a not for profit organisation, bringing together those living with a rare disease and organisations representing them: clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policy makers and academics. … Continue reading