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- Angelman Ireland
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- Consultation on the UK plan for rare diseases
- Contact a Family
- Eurodis- Rare Diseases Europe
- Genetics and Rare Disorders Organisation
- Huntington's Disease Association Northern Ireland
- IPPOSI
- Jennifer Trust for Spinal Muscular Atrophy
- Medical Research Charities Group
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- Myasthenia Gravis Association
- Neuroacanthocytosis Advocacy
- Neuroblastoma Alliance
- Patient and Client Council
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- PSP Association
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- Rare Disease Day
- Rare Disease Day's YouTube channel
- RDUK
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- Syringomyelia Arnold Chari Association
- Thalidomide Trust
- Tuberous Sclerosis Association
- Wilson Disease Association
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Tag Archives: planning
Partnership meeting – get your voice heard!
Recently we’ve been working on a draft of our Strategic Plan, covering the five years from now until 2017. It builds on our initial work in getting the Partnership together 18 months ago, and is based on the contributions of … Continue reading
Posted in Events
Tagged catch up, have your say, meeting, partnership, planning, what do you think?
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