Tag Archives: PCC report

Lift off!

NIRDP was formally launched on Rare Disease day with much support from patients, families, health professionals and politicians. We were delighted that the NI Minister for Health, Social Services and Public Safety was able to participate in the event- cutting cake, … Continue reading

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It’s Rare Disease Day — time for a launch or two!

Local advocates call for action on international Rare Disease Day as shocking new report highlights shortcomings in Health and Social Care for people with rare diseases A new report launched by the Patient and Client Council at Stormont today to … Continue reading

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