Tag Archives: NI implementation plan

Who knows what in rare disease? Engagement, information and communication

As part of the work on the NI Rare Disease Plan, NIRDP has been running a series of Workshops across Northern Ireland, and an Online Survey, to identify information needs in relation to rare disease issues; what information is currently … Continue reading

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Let’s talk about the plan

NIRDP are pleased to announce that we will be coordinating a series of open meetings across the region for consideration of the draft NI Rare Disease implementation plan. The meetings are open to all, and are being held in association … Continue reading

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All The Busy

The summer holidays are still in full swing, but the NIRDP volunteers are keeping as busy as ever. Some have been in Whitehall, involved in the development of the UK Rare Disease Plan. The Plan still needs a lot of … Continue reading

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