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Useful Links
- Angelman Ireland
- Ataxia UK
- Carers NI
- Clic Sargent
- Consultation on the UK plan for rare diseases
- Contact a Family
- Eurodis- Rare Diseases Europe
- Genetics and Rare Disorders Organisation
- Huntington's Disease Association Northern Ireland
- IPPOSI
- Jennifer Trust for Spinal Muscular Atrophy
- Medical Research Charities Group
- MND Association
- MPS Society
- MSA Trust
- Muscular Dystrophy Campaign
- Myasthenia Gravis Association
- Neuroacanthocytosis Advocacy
- Neuroblastoma Alliance
- Patient and Client Council
- Porphyria
- PSP Association
- PWSA
- Rare Disease Day
- Rare Disease Day's YouTube channel
- RDUK
- SHINE
- Syringomyelia Arnold Chari Association
- Thalidomide Trust
- Tuberous Sclerosis Association
- Wilson Disease Association
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Tag Archives: MND
I Am Breathing- film screening
Support the Motor Neurone Disease Association Awareness Month – film screening at the Belfast Film Festival The Motor Neurone Disease (MND) Association is the only national organisation in Northern Ireland, Wales and England dedicated to the support of people with … Continue reading
Study day
NIRDP hosted a study day for health professionals and care providers in Strabane, Co Tyrone, on 6th March. Participants came from all over the Western Health and Social Care Trust area, and from Donegal. The event was chaired by Dr … Continue reading
Posted in Uncategorized
Tagged compassion fatigue, education, HD, MND, PSP, study day, supporting the carer, who do I tell?, WHSCT
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