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Useful Links
- Angelman Ireland
- Ataxia UK
- Carers NI
- Clic Sargent
- Consultation on the UK plan for rare diseases
- Contact a Family
- Eurodis- Rare Diseases Europe
- Genetics and Rare Disorders Organisation
- Huntington's Disease Association Northern Ireland
- IPPOSI
- Jennifer Trust for Spinal Muscular Atrophy
- Medical Research Charities Group
- MND Association
- MPS Society
- MSA Trust
- Muscular Dystrophy Campaign
- Myasthenia Gravis Association
- Neuroacanthocytosis Advocacy
- Neuroblastoma Alliance
- Patient and Client Council
- Porphyria
- PSP Association
- PWSA
- Rare Disease Day
- Rare Disease Day's YouTube channel
- RDUK
- SHINE
- Syringomyelia Arnold Chari Association
- Thalidomide Trust
- Tuberous Sclerosis Association
- Wilson Disease Association
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Tag Archives: members
NIRDP gets out and about
The pupils and staff of St Colman’s Primary School, Lambeg, helped raise £300 for NIRDP, by having an Olympic Torch Relay in school this week. Before the event, the school had given each family information about NIRDP. One of our members, Fiona … Continue reading
NIRDP Planning Day: 14 June 2012
About our Planning Day: WHY PLAN? The aim is to identify what we want to achieve, and to build our Action Plan for the next 3 years. To do this, we need the ideas, skills, knowledge and experience of as … Continue reading
Supporting our Torch bearers
NIRDP is delighted to be able to support members, family and supporters taking part in the London 2012 Olympic Torch relay coming to a street near you over the next few days. Leigha Coade, who has Cystic Fibrosis, will be … Continue reading
Posted in Events
Tagged events, families, fun day out, members, networks, supporters, torch relay
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