Tag Archives: consultation

Implementation Plan Consultation: Open Meetings

The Open Meetings on the Draft Rare Disease Implementation Plan are ongoing: 6 January 2015: Lecture Theatre, Level 2, South West Acute Hospital, 124 Irvinestown Road, Enniskillen Co Fermanagh, BT74 6DN, 3.30pm to 5.30 pm 7 January 2015: Mourne Country Hotel, 52 … Continue reading

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DHSSPS Consultation – your input is needed!

Following publication of the UK Strategy for Rare Diseases in November 2013, all four UK countries agreed to develop an implementation plan or high level strategies, relevant to their respective jurisdiction, to deliver the 51 commitments by 2020. This strategy … Continue reading

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Workshop invitation – End of Life Care Patient Passport

The Royal College of GPs NI End of Life Care Group would like to invite you to a workshop in the process of designing the End of Life Care Patient Passport. They have been commissioned to complete this task by the … Continue reading

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UK Rare Disease Plan consultation and webinar

At the NIRDP launch on 29th February, Rare Disease Day, Edwin Poots, the NI Minister for Health, Social Services and Public Safety, launched a public consultation on a UK plan for rare diseases. (See the consultation document here). This is a joint … Continue reading

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