Rare Disorders without Borders

 Rare Disorders without Borders

Save the date

An all-Ireland meeting of patients’ organisations

to mark International Rare Disease Day and

the Irish Presidency of the Council of the

European Union

28th February, 2013 at 9am

Wood Quay Venue

Civic Offices, Dublin 2.

 

Background

An all-Ireland conference will take place in Dublin on the 28th of February 2013 to mark Rare Disease Day, the internationally recognised day for rare diseases.

The conference is being coordinated by those organisations that bring together all the patient groups associated with rare diseases on the island of Ireland. These are the Northern Ireland Rare Disease Partnership (NIRDP), Rare Disease UK and The Rare Disease Task Force which brings together the Genetic and Rare Disorders Organisation (GRDO), the Irish Platform for Patients’ Organisations, Science and Industry (IPPOSI) and the Medical Research Charity Group (MRCG).

In line with the theme Rare Disorders without Borders, the conference will promote collaboration and innovative ways of working between Ireland, north and the south in the field of rare diseases. The conference will take place in Dublin to coincide with the Irish Presidency of the European Council of the EU, fitting given the background to the ongoing development of national plans for rare diseases in the EU.

Speakers

In advance of the conference, the Organising Committee will identify leading expert speakers from across Europe to address delegates. It is expected that the final line-up will include a key note speaker from the European Commission who will address the Directive on Cross-border Healthcare. Further announcements regarding speakers will be made closer to the event.

 

Registration

There is no charge to attend this conference but registration is required. Register by email to info@ipposi.ie or telephone +353 (1) 407 1629.

If you are considering attending from NI, please let Sarah McCandless (0800 917 0222) know, so we can make arrangements for travel and accommodation.

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