Rare disease and research – find out more

Rare Disease and Research

25th September, 2014

6.30pm

Postgraduate lecture theatre, Belfast City Hospital

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Reception from 6pm, with food and drink

6.30 An introduction to the Rare Disease Plan  Christine Collins, NIRDP and HDANI

6.40 Huntington’s Disease  Majella McConville, HD Specialist Nurse

7.00 KEYNOTE  Why does research matter? Charles Sabine, international patient advocate

7.30 Research on a shoestring  Professor Patrick Morrison, Professor in Genetic Medicine, QUB

8.oo Rare disease research- the nuts and bolts!  Dr Amy Jayne McKnight, senior lecturer, QUB

8.15 Panel discussion, all speakers

8.30 End

To register attendance, please email events@nirdp.org.uk, including any dietary requirements

This event is run by Huntington’s Disease Association NI, NIRDP and the Public Health Agency.

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One Response to Rare disease and research – find out more

  1. Jennifer Warnock says:

    I would like to register two places at the conference tonight. Jennifer Warnock HDANI.

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