Register now for Our AGM and Autumn Meeting: 25 Oct, Grosvenor Hall

Register NOW for our annual general meeting and Autumn Meeting, 3-5 pm, 25 Oct, at Grosvenor Hall, BCM, Glengall St.

Our annual general meeting includes formal updates on our report and accounts presented by directors and the appointment of directors to fill current vacancies.

Then this formal business will be followed by updates from

  •  our NIRDP Project Officers, Tanya and Ian;
  • QUB?Centre for Public Health;
  • the Neurological Care Coordinators, and
  • the Ten Thousand More Voices programme.

There will also be tea/coffee and biscuits (and cake!)

Come along to hear about what is happening, and to make your voice heard on future priorities for NIRDP.

Register now- by email to us at info@nirdp.org.uk or  via eventbrite: https://www.eventbrite.co.uk/e/nirdp-annual-general-meeting-tickets-51068616607

Posted in Events, Uncategorized | Leave a comment

Huntington’s Disease Association All-Island Conference

      

 

Huntington’s Disease Association Northern Ireland & Huntington’s Disease Association of Ireland

Invite you to their Joint Inaugural Conference
Friday 28th September

Canal Court Hotel, Newry, BT35 8HF

 

DRAFT PROGRAMME
12- 1pm            Registration and light lunch/refreshments served
1-1.30pm         Welcome – Sorcha McPhillips, HDANI & HSC speaker – launch of E-learning resource
1.30-1.45pm    Patricia Towey, HDAI brief intro on HDAI and speaker intros
1.45-2.15pm    Lauren Byrne, University College London, HD Department
2.15-2.45pm    Professor Asa Petersén, Lund University, HD Center
2.45-3.15pm    Aoife Gallaher, Bloomfield Hospital, Dublin
3.30-3.45pm   Comfort break tea/coffee
3.45-5.30pm   Interactive workshop on HD management led by HDANI with input from carers and professionals
5.30pm             Closing remarks, photos, certificates

This is a not for profit event with a fee of £20/€22 which includes lunch and materials
Payment can be made on the day or invoiced as appropriate

If you have any questions about the conference or would like to register
email sorcha@hdani.org.uk or call/text 079 8284 3907
email info@huntingtons.ie or call 01 872 1303

Posted in Uncategorized | Leave a comment

Building Research Partnerships: One day workshop

                                                

 

Involving the Public in the Design and Conduct of Research:

Building Research Partnerships

A workshop for Researchers & Members of the Public

11th October 2018, 9:30 am – 4pm, Ulster University Jordanstown

 

 

This free workshop will look at practical ways to involve patients and the public as partners (PPI) in the research process. It will explore the issues related to becoming and being a member of the public involved in research and the role of researchers in facilitating this involvement.

The workshop is aimed at patients, carers and members of the public who are interested in getting involved in research and researchers interested in involving patients, carers and the public in their research.

Why should I attend?

  • As a patient, carer or member of the public, you will gain an understanding of what it means to be involved in research at each stage of the research process.
  • As a researcher, you will gain an understanding of how patients, carers and the public can get involved in research, practical tips, the opportunity to share your research expertise and build research partnerships.

 

Registration:

To register your interest for this workshop please contact: cara.mcclure@hscni.net  or Tel: 028 9536 3399 by 1st October 2018.

 

Places will only be confirmed after the closing date.

 

 

Posted in Uncategorized | Leave a comment

EURORDIS Winter School 2019 applications are now open!

 

The EURORDIS Winter School on Scientific Innovation and Translational Research consists of one week face-to-face training held in Paris in March.

The next on-site training will take place on 11-15 March 2019 at the Imagine Institute in Paris. Apply now to take part in a week of face-to-face training, applications close 15 September.

Applicants will be notified of the outcome of their application by mid October.

For more information or to register your interest log on to https://openacademy.eurordis.org/winterschool/

 

Posted in Uncategorized | Leave a comment

Building Research Partnerships Workshop: 11 October 2018

The Public Health Agency Research and Development division is pleased to announce the next ‘Involving the Public in the Design and Conduct of Research: Building Research Partnerships’ workshop will take place in Ulster University Jordanstown on 11 October 2018 from 9.30am until 4.00pm.

The workshop is free and open to patients, carers and the public interested in becoming involved in research and to researchers who are interested in involving patients, carers and the public in their research.

For more details and to register your interest to attend please click here.

Posted in Uncategorized | Leave a comment