STRONGER TOGETHER
Advocating: Establish a networking/lobbying/policy Task-force, to
- develop the Rare Disease Plan,
- ensure rare disease issues are mainstreamed into policies and programmes, and
- raise individual issues with relevant authorities
Educating: Developing educational and training interventions to
- improve awareness of rare diseases and rare disease issues and impacts, and
- increase levels of knowledge and expertise
among medical and health and social care professionals
Innovating: Work together to:
- develop and implement improved methods of managing and treating rare diseases
- improve the quality of life for those affected by rare diseases; and
- increase the efficiency and effectiveness of care and support
Working with and for people affected by a rare disease, their dependants, carers, and those treating them
