Just to say “You are a Star!” to Leigha Coade, who ran a double shift (that’s 600 m) in the Olympic Torch relay on Sunday!
- next steps- staff!
- Who knows what in rare disease? Engagement, information and communication
- NORTHERN IRELAND RARE DISEASES IMPLEMENTATION PLAN – FOCUS WORKSHOP FOR HEALTHCARE PROFESSIONALS
- NI Rare Diseases Implementation Plan: work in progress!
- Communication and Information Review: Have your say, and make the NI Rare Disease Plan work!
Tags#strongertogether 29th Feb advocating awareness company details conference consultation contact us diagnosis diagnosis and early intervention education end of life care events fundraising genetics launch Living Every Day with Rare Disease living with a rare disease living with rare disease members MND networks NIHRC NI implementation plan palliative care partnership PCC PCC report planning Rare Disease Rare Disease Day research Strategy stronger together study day support supporters support groups supporting the carer survey taking part torch relay UK Plan for Rare Disease Consultation WHSCT working with rare diseases