Category Archives: Uncategorized

Queens University “Patient Passport” Study 

The Northern Ireland Rare Disease Partnership are supporting a research study being run by Queens University called the “Patient Passport”.  This study is researching the benefits of a document that people who manage a rare condition can carry around with … Continue reading

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Foyle & NW forum

We had a meeting of our Foyle group on Monday 6 November & were delighted to mark the start of the Stronger Together project in the area. Our Project Oficer is Tanya Boggs, and she’ll be working across NHSCT and … Continue reading

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Staff Vacancy: Project Officer (part time, home based)

We have recently been awarded funding by the National Lottery through the Big Lottery Fund for a 2 year pilot project, “Stronger Together”, which will work to build capacity within and across the rare disease sector and help to identify … Continue reading

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NIRDP MOVING FORWARD AFTER A SUCCESSFUL RECRUITMENT PROGRAMME!

We were one of six delighted community groups across Northern Ireland celebrating a shared award of £1 million from The National Lottery this June, receiving a £112,124 share of this total fund to employ 2 part-time members of staff who … Continue reading

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next steps- staff!

We are delighted that we have been awarded funding by the National Lottery through the Big Lottery Fund, for a 2 year pilot project. The Stronger Together project will work to build capacity within and across the rare disease sector … Continue reading

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