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- Angelman Ireland
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- Consultation on the UK plan for rare diseases
- Contact a Family
- Eurodis- Rare Diseases Europe
- Genetics and Rare Disorders Organisation
- Huntington's Disease Association Northern Ireland
- IPPOSI
- Jennifer Trust for Spinal Muscular Atrophy
- Medical Research Charities Group
- MND Association
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- Muscular Dystrophy Campaign
- Myasthenia Gravis Association
- Neuroacanthocytosis Advocacy
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- Patient and Client Council
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- PSP Association
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- Rare Disease Day
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- Syringomyelia Arnold Chari Association
- Thalidomide Trust
- Tuberous Sclerosis Association
- Wilson Disease Association
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Category Archives: Events
I Am Breathing- film screening
Support the Motor Neurone Disease Association Awareness Month – film screening at the Belfast Film Festival The Motor Neurone Disease (MND) Association is the only national organisation in Northern Ireland, Wales and England dedicated to the support of people with … Continue reading
Duchenne Muscular Dystrophy: Stormont Long Gallery Event
Stronger Together There’s a Stormont Long Gallery event on 17 June, from 11 am to 1 pm which will give an opportunity for families, young people and children to speak to their MLAs about living with Duchenne Muscular Dystrophy. The event, kindly sponsored … Continue reading
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Palliative and End of Life Care
Date for you Diary To mark ‘Dying Matters Awareness Week’ you are invited to the regional Palliative and End of Life Care ‘Good Practice and Progress’ event. The event will update on key areas of work that have been undertaken … Continue reading
Working meetings
NIRDP hold working meetings every two months or so. These are open to all, and have an agenda based on our four strategic themes advocating educating innovating stronger together Volunteers are working away on work under each of these themes … Continue reading
Changing attitudes and behaviour towards people with a disability
CONFERENCE: DELIVERING SOCIAL CHANGE CHANGING ATTITUDES AND BEHAVIOUR TOWARDS PEOPLE WITH A DISABILITY DATE: THURSDAY 2ND MAY 2013, TIME: 9.30AM – 4.15PM VENUE: RIDDEL HALL, QUEENS UNIVERSITY, STRANMILLIS, BELFAST To register for the conference please click on the … Continue reading
Rare Disease Day Today!
Check out our micro-site at http://rdwb.nirdp.org.uk. If you haven’t already, sign-up for further information by clicking ‘Join Us‘ at the top of this page.
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RARE DISEASE DAY 2013 UPDATE: Venue and timings changed!!
Due to popular demand (isn’t that wonderful!) we have had to move Venue: the Joint Rare Disease Day Event is now being held, courtesy of Dublin City Council, in the prestigious surroundings of The Rotunda, Dublin City Hall Timings have also … Continue reading
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Rare Disease Day
The 2013 theme for Rare Disease Day is Rare Disorders Without Borders- particularly relevant to a small island on the far west of Europe with its own international border. NI Rare Disease Partnership are co hosting a joint event with … Continue reading
Workshop invitation – End of Life Care Patient Passport
The Royal College of GPs NI End of Life Care Group would like to invite you to a workshop in the process of designing the End of Life Care Patient Passport. They have been commissioned to complete this task by the … Continue reading
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Tagged consultation, end of life care, patient passport, primary care, RCGP, workshop
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Conference – Institute for Public Health
On 11 October the Institute for Public Health are hosting a free conference in Belfast. IPH is hosting a dynamic, informal, Public Health Open Conference to provide a platform for people from all sectors (statutory, academia, community and voluntary etc), … Continue reading