Category Archives: Events

Joint North South Rare Disease Day 2017/Foyle and North West Rare Disease Forum

This year, we are celebrating Rare Disease Day on 28 February jointly with our counterparts in the South, The Rare Disease Taskforce- in the palatial surroundings of the Royal Hospital Kilmainham, from 9.45 to 4 pm: see the impressive Programme below. … Continue reading

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Ataxia

Rare Disease “Research into Practice” Series Ataxia: Translating Research into Practice 17 February 2017 Grosvenor Hall, Glengall Street, Belfast BT12 5AD NIRDP has joined forces with Ataxia UK and with the support of the Public Health Agency’s Research and Development … Continue reading

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Foyle and North West Rare Disease Forum

Foyle and North West Rare Disease Forum Date: Saturday 10th December Time: 2.00pm – 4.00pm Venue: McCorkell Suite, City Hotel, Derry/Londonderry, BT48 7AS The Foyle and North West Rare Disease Forum will be holding their next meeting at the City … Continue reading

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AGM and Autumn Partnership Meeting

Our 4th AGM  will be held at 11.00 0n Thursday 20 October 2016  at the Civil Service Sports Pavilion, Stormont, Upper Newtownards Road, Belfast BT4 3SU. Registration,  tea/coffee and scones will be from 10.15. After the AGM proceedings, we will welcome guests … Continue reading

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Rare Disease Day 2016 Patient Voice and Empowerment

Rare Disease Day 29 February is getting close!  Here are the full programmes for the Conference in Riddel Hall, and for the Reception in the Long Gallery at Stormont; follow the links in the post below to register NOW The … Continue reading

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