Author Archives: danielle

Foyle and North West Forum meeting update

The Foyle and NW forum (NIRDP) meeting took place on Saturday 19th May and it was great to welcome old and new faces to the group. There was lively discussion about issues affecting those with rare diseases with particular reference … Continue reading

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COUNTING THE COSTS FOR FAMILIES SURVEY:DEADLINE 18TH MAY

Contact: For Families with Disabled Children, is calling on mums, dads and other family members and carers of children and young people with additional needs or disabilities to take part in important research about family finances. Counting the Costs 2018 … Continue reading

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PRIORITISING RETENTION IN RANDOMISED TRIALS: CALL FOR PARTICIPATION PRIORITY II is a research project that aims to identify what effects whether people stay involved in randomised trials. This research is important as trials form vital insight into future healthcare options … Continue reading

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GRANTS AVAILABLE FROM FAMILY FUND

Family Fund provides grants and other forms of support for families raising disabled or serious ill children and young people (under 18). In 2016/17 the Fund supported over 4,000 local families with grants worth over £1.5 million. We believe that … Continue reading

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EVENT NOTIFICATION: NORTH WEST FORUM, 19TH MAY

Join us for our North West Forum meeting on 19th May at The City Hotel, Derry from 11am-1pm. All are welcome and is open to anyone affected by rare conditions, including carers and family members, for those interested in finding … Continue reading

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