Author Archives: Christine

NIRDP “Our Governance Role” Workshop: 7 November 2018, 4pm to 7pm, Grosvenor Hall, 5 Donegall St, Belfast,

  As part of our NIRDP “training” work, we are holding  a Workshop for those who are Trustees/Governors/Directors of Charities and voluntary organisations; or who are thinking of taking up the role. The Workshop will cover: “Our Governance Role”, led … Continue reading

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Joint North South Rare Disease Conference: 5 March 2018

  We are busy finalising the Programme for this, the Fourth Joint North South Rare Disease Conference. There are still some details to sort out, but see below  for the latest version. Programme 09.00 – 10.15               REGISTRATION AND COFFEE 10.15 … Continue reading

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Rare Disease Day 2018: Joint North South Conference, Riddel Hall, 5 March

  Rare Disease Day is coming !  This year, we are looking forward to welcoming you to the fourth Joint North South Rare Disease Day event, held with our friends the Irish Rare Disease Taskforce, on 5 March 2018 in … Continue reading

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Stronger Together Project starts work!

  Sandra Campbell, Tanya Boggs, and Fiona McLaughlin: Getting the Stronger Together Project off to a great start in Derry!  Today marks a great step forward for NIRDP and for all those affected by rare diseases in Northern Ireland, as … Continue reading

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Who knows what in rare disease? Engagement, information and communication

As part of the work on the NI Rare Disease Plan, NIRDP has been running a series of Workshops across Northern Ireland, and an Online Survey, to identify information needs in relation to rare disease issues; what information is currently … Continue reading

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