Author Archives: admin


Rare Disease “Research into Practice” Series Ataxia: Translating Research into Practice 17 February 2017 Grosvenor Hall, Glengall Street, Belfast BT12 5AD NIRDP has joined forces with Ataxia UK and with the support of the Public Health Agency’s Research and Development … Continue reading

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Open Meeting Registrations

To register for the upcoming open meetings, go to:

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DHSSPS Consultation – your input is needed!

Following publication of the UK Strategy for Rare Diseases in November 2013, all four UK countries agreed to develop an implementation plan or high level strategies, relevant to their respective jurisdiction, to deliver the 51 commitments by 2020. This strategy … Continue reading

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Autumn Partnership Meeting – Big News

More news on our Autumn Partnership Meeting, to be held from 10.45 to 12.30 (immediately after our AGM) in the Castleview Suite in the Pavilion at Stormont, on 27th October. Jim Wells, MLA, Minister for Health, who will be the … Continue reading

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Palliative Care Week 6-11th October

Next week is Palliative Care Week. Organised by The Palliative Hub, this event is the first-ever all island Palliative Care Week takes place from October 6-11. It is being coordinated by the All Ireland Institute of Hospice and Palliative Care … Continue reading

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