Ataxia

Rare Disease “Research into Practice” Series
Ataxia: Translating Research into Practice
17 February 2017
Grosvenor Hall, Glengall Street, Belfast BT12 5AD

NIRDP has joined forces with Ataxia UK and with the support of the Public Health Agency’s Research and Development Division is bringing international experts in Ataxia together at a training Conference in the Grosvenor Hall, Belfast on 17 February.

The conference will be of relevance and interest to anyone living or working with Ataxia and other movement disorders; and to those interested in the hearing difficulties associated with Ataxia. Don’t miss this opportunity to hear from world leading clinicians on recent developments in the diagnosis and management of Ataxia; and from patients and carers on the experience of living with Ataxia.

Register now at the link below!

The event has been approved by the Federation of Royal Colleges of Physicians of the UK for 5 Category 1 (external) CPD Points.

9.00 Registration & Coffee
9.30 Welcome Christine Collins, Northern Ireland Rare Disease Partnership
9.35 Living with ataxia Clodagh Clerkin, Ataxia Ireland
9.45 Types of ataxia and their clinical care pathways Dr Petya Bogdanova-Mihaylova, Registrar, Tallaght Hospital, Dublin
10.15 The patient experience of diagnosis Alex Duncan, Ataxia UK
10.25 Diagnosis of inherited ataxias: recent developments in genetics research Professor Patrick Morrison, Consultant in clinical genetics, Belfast NHS Trust
11.00 Break
11.20 How to reach a diagnosis in the ataxias: a clinical perspective Professor Marios Hadjivassilliou, Professor of Neurology Sheffield Teaching Hospitals NHS Foundation Trust
12.05 Experiences of ataxia patients in Northern Ireland – results of a survey undertaken by Ataxia UK Sue Millman, CEO Ataxia UK
12.30 Speech therapy interventions in ataxia Professor Anja Lowit, Professor of Speech and Language Therapy, Strathclyde University
13.00 Lunch
14:15 Overview of Ataxia Medical Guidelines Dr Julie Greenfield, Head of Research, Ataxia UK
14:25 Hearing difficulties in people with ataxia and the use of FM hearing devices Dr Kai Uus, Reader in audiology, Manchester University
14:55 Ataxia Research: Latest developments in clinical studies Dr Julie Greenfield, Head of Research, Ataxia UK
15:25 Any remaining questions and closing remarks Sue Millman, CEO Ataxia UK
15.40 Close
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