AGM and Autumn Partnership Meeting

Our 4th AGM  will be held at 11.00 0n Thursday 20 October 2016 

at the Civil Service Sports Pavilion, Stormont, Upper Newtownards Road, Belfast BT4 3SU.

Registration,  tea/coffee and scones will be from 10.15.

After the AGM proceedings, we will welcome guests (including MLA’s and other elected representatives) to our Autumn Partnership Meeting, starting at 11.45  

The  Outline Programme is:

  • The importance of a diagnosis in rare diseases (Gillian Cassidy, 22Q Support Group);
  • Progress at the Northern Ireland Genomic Medicine Centre (Cheryl Flanagan, Project Manager)
  • Progress on the NI Rare Disease Implementation Plan
  • Developments in the reform of the Health and Social Care system

This will be followed by refreshments; and a chance to exchange news and views!

Please Register here for the AGM:

Please Register here for the Autumn Partnership Meeting only:

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