Building Research Partnerships: One day workshop

                                                

 

Involving the Public in the Design and Conduct of Research:

Building Research Partnerships

A workshop for Researchers & Members of the Public

11th October 2018, 9:30 am – 4pm, Ulster University Jordanstown

 

 

This free workshop will look at practical ways to involve patients and the public as partners (PPI) in the research process. It will explore the issues related to becoming and being a member of the public involved in research and the role of researchers in facilitating this involvement.

The workshop is aimed at patients, carers and members of the public who are interested in getting involved in research and researchers interested in involving patients, carers and the public in their research.

Why should I attend?

  • As a patient, carer or member of the public, you will gain an understanding of what it means to be involved in research at each stage of the research process.
  • As a researcher, you will gain an understanding of how patients, carers and the public can get involved in research, practical tips, the opportunity to share your research expertise and build research partnerships.

 

Registration:

To register your interest for this workshop please contact: cara.mcclure@hscni.net  or Tel: 028 9536 3399 by 1st October 2018.

 

Places will only be confirmed after the closing date.

 

 

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EURORDIS Winter School 2019 applications are now open!

 

The EURORDIS Winter School on Scientific Innovation and Translational Research consists of one week face-to-face training held in Paris in March.

The next on-site training will take place on 11-15 March 2019 at the Imagine Institute in Paris. Apply now to take part in a week of face-to-face training, applications close 15 September.

Applicants will be notified of the outcome of their application by mid October.

For more information or to register your interest log on to https://openacademy.eurordis.org/winterschool/

 

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Building Research Partnerships Workshop: 11 October 2018

The Public Health Agency Research and Development division is pleased to announce the next ‘Involving the Public in the Design and Conduct of Research: Building Research Partnerships’ workshop will take place in Ulster University Jordanstown on 11 October 2018 from 9.30am until 4.00pm.

The workshop is free and open to patients, carers and the public interested in becoming involved in research and to researchers who are interested in involving patients, carers and the public in their research.

For more details and to register your interest to attend please click here.

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Regional Swallowing Difficulties Engagement Event

Swallowing Difficulties (Dysphagia) Regional Service User and Carer Engagement Event Thursday 16th August 12:30pm—3:30pm

Seagoe Parish Centre, Portadown

Lunch available on arrival

 

The Public Health Agency is leading on work across Northern Ireland to help improve safety and quality of life for adults with swallowing difficulties.

They are keen to hear the views of those living with or affected by the condition so if you have swallowing difficulties or if you care for someone who does, your attendance and input at this event would be extremely valued.

The Public Health Agency is particularly keen to engage with service users and carers with experience of dysphagia, including users and/or carers from the key areas below:

  • Adult Learning Disability
  • Neurology
  • Stroke
  • Mental Health
  • Carers of people with dementia or the person with dementia if they are able to attend
  • Those with experience in an acute setting
  • Those in receipt of domiciliary care
  • Those with palliative care needs
  • Private Nursing homes
  • Residential homes

If you wish to attend or would like to discuss in more detail, please contact Martin McCrory, Project Lead, at martin.mccrory@hscni.net by Friday 10th August

                          

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Queens University Belfast request for research participation

Information, Education, and Social Media Resources for Rare Disease:

Are you part of a collaborative group working in the area of rare diseases in Northern Ireland?

Queen’s University would welcome the opportunity to interview you (via telephone or in person) to evaluate awareness of rare diseases and the related information and educational resources available for patients, their families and healthcare professionals.

We are hoping to improve rare disease resources in Northern Ireland and would appreciate your help so that we can identify important priorities for local development.  This may be creating new information or signposting local individuals to excellent resources that exist elsewhere.

We would love to hear from you.  If you are interested in knowing more please contact Julie McMullan via email at julie.mcmullan@qub.ac.uk

Thank you for considering being part of this important research!

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