NIRDP “Our Governance Role” Workshop: 7 November 2018, 4pm to 7pm, Grosvenor Hall, 5 Donegall St, Belfast,

 

As part of our NIRDP “training” work, we are holding  a Workshop for those who are Trustees/Governors/Directors of Charities and voluntary organisations; or who are thinking of taking up the role.

The Workshop will cover:

  • “Our Governance Role”, led by Eileen Mullan of Strictly Boardroom ; and
  • An overview of GDPR, delivered by NICVA

This is a great opportunity to learn more about how Boards work; and what is needed from Board Members to make their organisations work effectively, as well as to learn about how to manage information , under the new GDPR rules.  It will be fun and very informative; and it’s FREE!

Places are limited, so if you would like to come, please email: christine@nirdp.org.uk by Wednesday 31 October

 

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Healthcare in the UK: Information website & newsletter sign up

Please find below a link to a very useful website as has been recommended to us by one of our members.

The site offers all the latest news from the healthcare sector, about health care across the UK.

There is an opportunity to sign up for a daily or weekly newsletter to keep you up to speed on all new happenings within this sector.
https://www.healthcareintheuk.co.uk/

You can also follow via FB at @healthcareintheuk or twitter @myhealthcare_uk

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Personalised Medicine Awareness Month 2018

Join the European Cancer Patient Coalition (ECPC) in making personalised care more of a reality across Europe!

This November, join @cancereu advocating for greater access to molecular testing in Europe. Just one test could change a patient’s treatment plan & help us in #CrackingTheCancerCode.

The ECPC has kicked-off their first ever Personalised Medicine Awareness Month 2018!

The European Cancer Patient Coalition calls on everyone to unite this November and promote the importance of awareness and access to cancer molecular testing in all European countries!

Join the ECPC today and show your support by downloading the Campaign Action Toolkit. It contains key messages, social media materials, a press release, outreach letter to policymakers and much more – to help patient organisations raise awareness and gather commitment at a national level.

To find out more about the campaign click here.

#CrackingTheCancerCode #PMAM18

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The Healthcare Improvement Studies Institute (THIS Institute) Workshop

 

Dr Anne Kilgallen, Chief Executive, Western Health and Social Care Trust would like to invite you to attend a creative and interactive workshop exploring health services research.  The workshop will be facilitated by THIS Institute (The Healthcare Improvement Studies Institute).

THIS Institute, at the University of Cambridge, is working with a Wellcome Trust award for public engagement to produce a series of creative and interactive workshops exploring health services research.

The workshops are for NHS staff, patients, carers, researchers and anyone else who interacts with the healthcare system.

They aim to show how research evidence is essential for improving the design and delivery of healthcare as well as how research can have a real impact on patients and staff working within the system. The workshops are based around a short theatre piece showing a patient’s journey through care, and then use participatory forum theatre techniques to start conversations around the impact and importance of research.

When: Friday 30 November 2018

Where: Lecture Theatre1, Trust Headquarters, MDEC Building, Altnagelvin Hospital

Time: 2.00pm – 4.00 pm

 

If you wish to attend please RSVP by Tuesday 20 November 2018 to:

Health Improvement, Equality & Involvement Department,

Western Health & Social Care Trust,

Maple Villa, Gransha Park, Londonderry, BT47 6WJ

Telephone: 028 71865127; E-mail: health.improvement@westerntrust.hscni.net

 

If you have any specific support needs please notify the office as soon as possible.

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SUPPORTING INDIVIDUALS WITH CHARGE SYNDROME

Sense Northern Ireland supports children with vision and/or hearing loss and those with multiple and complex needs.

As part of their Touching Lives Project, supported by Big Lottery, we are holding a training and information day with Gail Deuce for professionals on Friday 12th October in Girdwood Community Hub, Belfast and a family day on Saturday 13th October.  This project is primarily aimed at families with children aged 0-12.

CHARGE Syndrome is a rare genetic condition and a leading cause of hearing and vision loss and multi-sensory impairment.  The charity are aware of a number of families with very young children recently diagnosed with CHARGE Syndrome in Northern Ireland, and it is likely there are others not known to the charity.  Most children with CHARGE Syndrome have complex and ongoing medical and sensory needs, we hope you will be able to forward this to your colleagues and to families you may know of who might be interested.

There is no cost to professionals or families but places are limited. To find out more about the agenda for professionals, click on the link: Charge Flyer professionals[75134], or for the agenda for families, click here: Charge Flyer parents[75135]

If you would like any further information or are interested in attending please get in touch with Liz Gorman, Family Support Worker, on Liz.Gorman@sense.org.uk or call mb: O7799660006

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