Building Research Partnerships Workshop: 11 October 2018

The Public Health Agency Research and Development division is pleased to announce the next ‘Involving the Public in the Design and Conduct of Research: Building Research Partnerships’ workshop will take place in Ulster University Jordanstown on 11 October 2018 from 9.30am until 4.00pm.

The workshop is free and open to patients, carers and the public interested in becoming involved in research and to researchers who are interested in involving patients, carers and the public in their research.

For more details and to register your interest to attend please click here.

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Regional Swallowing Difficulties Engagement Event

Swallowing Difficulties (Dysphagia) Regional Service User and Carer Engagement Event Thursday 16th August 12:30pm—3:30pm

Seagoe Parish Centre, Portadown

Lunch available on arrival

 

The Public Health Agency is leading on work across Northern Ireland to help improve safety and quality of life for adults with swallowing difficulties.

They are keen to hear the views of those living with or affected by the condition so if you have swallowing difficulties or if you care for someone who does, your attendance and input at this event would be extremely valued.

The Public Health Agency is particularly keen to engage with service users and carers with experience of dysphagia, including users and/or carers from the key areas below:

  • Adult Learning Disability
  • Neurology
  • Stroke
  • Mental Health
  • Carers of people with dementia or the person with dementia if they are able to attend
  • Those with experience in an acute setting
  • Those in receipt of domiciliary care
  • Those with palliative care needs
  • Private Nursing homes
  • Residential homes

If you wish to attend or would like to discuss in more detail, please contact Martin McCrory, Project Lead, at martin.mccrory@hscni.net by Friday 10th August

                          

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Queens University Belfast request for research participation

Information, Education, and Social Media Resources for Rare Disease:

Are you part of a collaborative group working in the area of rare diseases in Northern Ireland?

Queen’s University would welcome the opportunity to interview you (via telephone or in person) to evaluate awareness of rare diseases and the related information and educational resources available for patients, their families and healthcare professionals.

We are hoping to improve rare disease resources in Northern Ireland and would appreciate your help so that we can identify important priorities for local development.  This may be creating new information or signposting local individuals to excellent resources that exist elsewhere.

We would love to hear from you.  If you are interested in knowing more please contact Julie McMullan via email at julie.mcmullan@qub.ac.uk

Thank you for considering being part of this important research!

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Encompass Programme Update

For anyone interested in progress on the health transformation strategy, please find attached a link at the bottom of the page to an update on NICVA’s web site from the Department of Health.
 
The Update covers the Encompass Programme which will create a single digital health record for everyone. Health professionals will be able to access these records as they need to but significantly the individual will also be able to access their own record securely and interact with the system.
Also included in the update:
• HSC Workforce Strategy
• Transformation Funding
• Elective Care Centres
• TIG at NICON18
• Transforming Cancer Services
• Looked After Children
• Social Procurement Clauses
 
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Palliative Care Talks: Children’s Palliative Care with Lucy, Sharon & Steph

It’s great to see that #StrongerTogether” is evident everywhere.
Open discussions about palliative care help demystify the misunderstanding that it is about dying when in reality it is more often about living.
Thanks for this inspiring insight into palliative care from those that are living the experience.
The ongoing drive to champion this speciality will improve services and most importantly the lived experience for patients and families.
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